So, it's been over a year since I've posted. Life.... I am currently fighting off an infection for the past three weeks. It has been a struggle. Hopefully this round of antibiotics work! I've been doing pretty well. My EF has increased to 40% from 21% when I was first diagnosed. I am working on losing 180 lbs...a whole person. I know that when I lose the weight my heart will have a better chance and it will be working less. I'm working on my doctoral degree (Ed.D) Doctor of Education, and this summer I will take the last of my courses!!! I'm so ready for this journey to end! I can't wait to have free time to do as I please!
Just wanted to provide an update....Hope you are all well!
Cle's Heart Disease Journey (Dilated Cardiomyopathy & Heart Failure)
Tuesday, February 17, 2015
2015....
Labels:
AICD,
cardiomyopathy,
DCM,
faith,
heart disease,
heart failure,
ICD
Friday, January 31, 2014
I'm back
Well, Happy New Year?!?!? LOL It's been a couple of months since I've posted. I traveled to NYC for the Christmas holiday (first time since diagnosis) on a plane. The flight wasn't too bad at all, it was dragging my bags and the long walk through the airport. It was great to see my family and friends. I decided to eat no meat in January and successfully did it. I will do my best to continue as I do feel better.
Tomorrow is February, already! Geez, time is flying by. Happy to be feeling much better and learning to live with this disease. Getting ready to spread the word about Heart Disease in February.
Go Red!
Tomorrow is February, already! Geez, time is flying by. Happy to be feeling much better and learning to live with this disease. Getting ready to spread the word about Heart Disease in February.
Go Red!
Monday, November 4, 2013
11.4.13
Today has been a day. Good, I can't complain...I'm alive, heart is beating and I'm alive. My cousin and sister left today and headed back home after helping take care of me for two weeks. I didn't get any naps today and I feel it. Just wanted to check in....life is life.
Thursday, October 31, 2013
Hair Cut...I'm Natural!!!
With everything happening in my life, for the past couple of months I've been losing/shedding hair. I've stopped relaxing my hair with chemicals since April, but had two different textures with the new growth. I woke up on Oct. 25th 2013 and decided I needed a change. I had my sister cut off all of my hair. I want it to grow back healthy, thick and natural. It was a big decision but one that I'm glad I made. It's taking a lot to get used to, but I'm happy it's done. My love isn't happy I cut it. He's always told me not to cut my hair, even before I had the thought. But I'm sure he will love it when it's long, curly and healthy.
Tuesday, October 29, 2013
Life Post third surgery
It has been a long two weeks!!! I went in the hospital for one surgery and left after two emergency surgeries. After the first lead replacement, it dislodged within 30 minutes of surgery. I was placed on bed rest and hadn't even gotten out of bed and the lead had already moved from my heart. The second surgery was scheduled very early the Friday morning and Dr. replaced the lead with a heavier one and used a different technique. I followed up a week later with my Dr. and it was still in place. I had the worse pain during recovery from the incision. It was itchy and burning...ugghhhh I don't want to do this again. I'm just happy to be on the road to recovery.
I'm still so shocked (literally) that the machine saved my life. I knew there was a "chance" my heart would fail because of the severity of the weakened muscle, but I didn't think that it would actually fail!! Who would?!?!?! But God is good! I had the machine to restore normal function. When I was discharged from the hospital, my heart began to beat on it's on without having to be paced the entire time by the machine. To God be the glory! I'm grateful for my family who are so supportive throughout it all. My baby sister and cousin who are here to help me through it. I head back to the Dr. tomorrow for another follow up and hopefully clearance to return to work. Pray for the best!
I'm still so shocked (literally) that the machine saved my life. I knew there was a "chance" my heart would fail because of the severity of the weakened muscle, but I didn't think that it would actually fail!! Who would?!?!?! But God is good! I had the machine to restore normal function. When I was discharged from the hospital, my heart began to beat on it's on without having to be paced the entire time by the machine. To God be the glory! I'm grateful for my family who are so supportive throughout it all. My baby sister and cousin who are here to help me through it. I head back to the Dr. tomorrow for another follow up and hopefully clearance to return to work. Pray for the best!
Labels:
AICD,
cardiomyopathy,
DCM,
faith,
flu,
flu shot,
heart disease,
heart failure,
heart friendly recipe,
ICD,
salt,
sodium,
strength,
survivor,
VLOG
Tuesday, October 15, 2013
Surgery Tomorrow
Soooooooooooooooo the last 24 hours has been a world wind. At my Dr. appointment yesterday, I found out that the machine attached to my heart saved my life. So grateful! Now a lead is dislodged and I have surgery scheduled tomorrow to fix the screw that's in my heart. God is Good. Hopefully the recovery is not as long and I can bounce back quickly. Glad to have some great people in my corner. Happy Happy Joy Joy!!!
Labels:
AICD,
cardiomyopathy,
DCM,
faith,
flu,
God,
heart disease,
heart failure,
heart friendly recipe,
ICD,
medical bracelet,
salt,
sodium,
strength,
survivor,
VLOG
Thursday, October 10, 2013
Back at it!
I've gone back to work and it has taken all of my time! The plan was to ease into it but that hasn't been successful. I'm back into the routine and it feels like I never missed a day. I'm learning to balance it all, and when it becomes too much I have been able to head home and rest. I'm grateful for a job that allows me to do so. It's good to interact with people once again, missed that human interaction. Just wanted to drop a note on how things are going. Hope they are well for you!
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